So Alina and Courtney went to the hockey game in their new jerseys they got for Christmas- daddy couldn't bare to buy himself a jersey after buying these for the girls(they aren't cheap!) Funny thing is he won a jersey last night through a raffle drawing- good thing he didn't get himself one! They absolutely love going to the hockey games with dad. And dad loves the fact that they love going just as much as he does.
I took this picture of Buddy tonight after a long day with him...he chose not to nap today for some reason! I watch him sleep a lot which makes me think how fortunate we are to have him. He makes us smile,laugh,and most importantly become better people. Our family would not be the same without him. It's still hard to believe how close we came to losing him but a year of great health makes it easier to not to think about it as much. Am I still sad he has down syndrome? Everyday I am but I'm never sad around him...his personality is too funny to be sad about anything. Hopefully I will stop feeling sorry for him that he has DS and just realize this is how it is going to be and he has the best family EVER. (aunt,grandparents and all)
The end of this month we are taking Tyson to the Down Syndrome Clinic in Philadelphia. I am anxious for him to be evaluated by DS specialists. I already know this little guy isn't going to let an extra chromosome stop him from doing anything!
Happy New Year to all!
Happy New Year! Thank you for commenting on my post. Someday girl, we are going to have to meet. Our worlds have so much in common, it will happen someday! We almost lost Jake on March 21, 09. That day haunts me like no other. How did I get thru it...I'm not sure. Part of me thinks that it (sadness) will never go away, but it WILL get easier. When Jake was born our pediatrician really opened a door to understanding my feelings. She told me that it was ok to grieve the loss of the son we thought we were having (typical), and in time the pain and confusion would go away and acceptance and love would fill 99% of the void. But there will always be that one little part that will always mourn the loss of the son we thought we were having. Those words have gotten me thru some really dark times. But she’s right…time is healing, but not totally forgotten. And like you said, almost loosing him really made us appreciate what we almost didn’t have at all! I am excited to hear about your trip to the Down Syndrome Clinic. I didn’t know there was such a thing. What are they going to be doing with Tyson while you are there?
ReplyDeleteAs far as Jake’s schooling…I am FREAKING out! So weird to think my 3 year old is going to the public schools later on this year! I am having a hard time letting go of my 5 year old going, but my 3 year old…crazy! He has been at the Children’s Developmental Center in the Birth to 3 program. At birth (and every year on his b day) they evaluate him to see what his specific needs are and set us up with different therapist, classes, ect. Right now he has physical therapy, occupational therapy, and speech therapy each for 45 minutes once a week. I also have him in a play group called Play to Learn which meets 1 time a month for a hour. And he is a “model feeder” in a feeding group that meets 1 time a month for a hour. On his 3rd birthday he gets sent off to the special ed classes in our local school district. I honestly don’t know what that entails, because I can’t look that far into the future! LOL. But I am also going to enroll him in a typical co-op preschool 2 days a week. A lot of the children in our DS group have gone to the same preschool & have done very well in the setting, so I am excited for that!
Sorry we missed Skip and the girls at the game! Happy New Year to you, those pretty girls, and your sweet Tyson. Your life isn't easy, but I know you wouldn't change it. :-)
ReplyDeleteLove your new picture at the top Jen, so sweet!!!
ReplyDeleteHappy New Year!!!
Sent you a e mail!
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